We are planning an event for August 2022 in which Managing Director Emma Murphy, her family, friends , families affected by FVSD/ FACS and also some supporting MPs (to be announced soon) will be taking on the challenge to climb Ben Nevis to help raise funds for INFACT. INFACT are a registered Charity in the UK representing children and their families that have been born with cognitive and physical disabilities caused by anti convulsant medicines whilst taken in Pregnancy such as Sodium Valproate. These disabilities come under umbrella terms of Fetal Valproate Spectrum Disorder and Fetal Anti Convulsant Syndrome. Currently there is very limited help or recognition for these syndromes, and one of the main aims of our charity INFACT is to directly address this problem by Campaigning for full redress and support for affected people. Our work consists of :
Raising awareness of FVSD & FACS within Parliament and keeping it on the Political Agenda Working with Governing Bodies such as Medicines Healthcare Regulatory Agency, Department of Health, World Health Organisation , NICE and other organisations ensuring prescribing information of Epilepsy medicines is as up to date as can be Advocating and helping parents apply for EHCP so children have the correct support in schools & colleges
With the aim of raising as many funds as possible we are opening this event to anybody who wishes to join us. The response to this event since it has been announced has been absolutely fantastic and are very grateful and appreciate everyone that have already committed to taking on this challenge
Emma Murphy –
“My husband and three of my children who are diagnosed with Fetal Valproate Spectrum Disorder will also be taking on this challenge. We would love to see any other families get involved with us. However this is not an easy challenge and careful consideration to your personal safety and fitness needs should be given as this will be taken at your own risk.
We ask anybody who accepts this challenge to open a personal Justgiving Page and we will provide all information relevant to INFACT for your page and a consent form. Everybody who raises money for INFACT and completes the Climb will receive a thankyou medal from us
We are looking to climb Ben Nevis on Saturday 13th August 2022However if the weather is bad that day and is markedly better on Sunday 14th, we will do it then. So please be aware to give yourself this option when planning your stay. There is a very good Campsite at the foot of Ben Nevis. They have electric tent pitches, caravans and pods available however early booking is strongly advised. Campsite — Glen Nevis Holidays (glen-nevis.co.uk). There are also hotels around the area of Ben Nevis that are easily accessible if camping is not for you.
I personally am travelling up on Thursday 11th August and am staying for 6 nights. We would love to see anybody make it a longer stay too. …The more the merrier :)In advance we know our families will support us with this, like you always have done, and we want to thank you already”
As a National Charity INFACT are now registered on fundraising platforms Justgiving and GoFundMe. You can set your own personal fundraising page up for this challenge and link it to our pages on these sites.
If you have any queries with regards to this event or any fundraising event / donations please contact us : Infactfundraising@gmail.com