INFACT (The Independent Fetal Anti-Convulsant Trust) is pleased to announce that we will soon be launching a series of community meet-ups across the UK for families affected by Sodium Valproate and other anti-epileptic medicines taken during pregnancy.
For many years families from across the UK have contacted INFACT seeking support, information, and guidance following a diagnosis of Fetal Valproate Spectrum Disorder (FVSD) or other Fetal Anti-Convulsant Syndromes (FACS).
While we regularly support families through our online community, email and telephone support, we recognise how important it can be for families to meet in person, share experiences, and connect with others who understand the challenges they face.
These community events will allow us to bring the campaign directly into local communities, giving families the opportunity to meet the INFACT team face to face in a welcoming and supportive environment.
What Families Can Expect
Our community meet-ups will provide an opportunity for families to:
• Receive one-to-one support and guidance from the INFACT team
• Access information about Fetal Valproate Spectrum Disorder (FVSD) and Fetal Anti-Convulsant Syndromes (FACS)
• Get advice on healthcare, education and benefits support
• Hear updates on the national campaign and progress around recognition and redress
• Connect with other families who share similar experiences
Living with the impact of these medicines can be incredibly challenging for both children and adults affected, and many families describe feeling isolated or unsure where to turn for trusted information and support.
Our aim is to create safe and supportive spaces where families feel listened to, understood, and connected to a wider community.
Help Us Plan the Locations
We are currently planning around six community meet-ups across the UK.
In order to organise these events and ensure they are held in locations that are accessible to as many families as possible, we would like to hear from those who may be interested in attending.
If you would like to attend a future meet-up, please contact us and let us know your approximate location. This will help us determine the most suitable areas for hosting these events.
Bringing the Community Together
For many years INFACT has worked alongside families, healthcare professionals, policymakers and parliamentarians to raise awareness of the risks associated with Sodium Valproate in pregnancy and to advocate for better recognition and support for those affected.
These community meet-ups represent an important step in strengthening support networks for families and ensuring that lived experience continues to shape the work we do.
Further information about locations and dates will be shared soon.
INFACT 