At INFACT, we are committed to ensuring that families affected by Fetal Valproate Spectrum Disorder (FVSD) and Fetal Anti-Convulsant Syndrome (FACS) feel supported, connected, and heard.
As part of this work, we are now hosting a series of INFACT parent and carer meet-ups across the UK, providing a safe and welcoming space for families impacted by anti-seizure medications in pregnancy, including Sodium Valproate.
💛 A Supportive Space for Families
Our meet-ups are designed to be informal, relaxed, and inclusive, offering families the opportunity to:
- Meet other parents and carers affected by FVSD and FACS
- Share lived experiences in a safe and understanding environment
- Access information and discuss services and support
- Reduce isolation by connecting with others on a similar journey
- Express their story, or simply listen
There is no pressure to speak or share. You are welcome to attend in a way that feels comfortable for you.
💛 Children and adults with FVSD are welcome to attend, creating an important opportunity for peer connection as well as family support.
🌟 Manchester Meet-Up – A Strong Start
We are proud to share that our first INFACT parent meet-up in Manchester was a great success.
Families travelled from across the UK to attend, highlighting the clear need for safe, supportive spaces where people can connect and feel understood.
We were pleased to welcome Eva from the Fetal Exposure to Medicines Service Clinic, giving parents a valuable opportunity to learn more about the service and ask questions directly.
We were also honoured to be joined by Deputy Mayor of Manchester Kate Green, a former MP and long-standing supporter of the campaign. It was wonderful to reconnect and continue these important conversations.
Feedback from families has been overwhelmingly positive and is already helping us to shape and improve future events.
📍 Upcoming INFACT Meet-Ups Across the UK
Following the success of Manchester, we are continuing our national programme:
🎟️ Book Your Free Place
All INFACT parent meet-ups are free to attend, but we kindly ask that you register via Eventbrite to help us manage numbers and ensure a safe, comfortable environment.
Click on the venues below to book your tickets
- Exeter (date to be confirmed)
Each event is designed to provide a local, accessible support opportunity for families affected by FVSD, FACS, and other anti-seizure medications in pregnancy.
All venues will be:
- Publicly accessible
- Located close to major transport links, including train stations
Final venue details will be confirmed closer to each event.
🤍 Supporting Families Across the UK
INFACT is a parent-led UK charity supporting families affected by anti-convulsant exposure in pregnancy. Through campaigning, awareness, and direct family support, we are working to ensure that no family feels alone.
These meet-ups are just one part of our ongoing commitment to:
- Improve awareness of FVSD and FACS
- Support families navigating diagnosis and daily life
- Create meaningful connections within the community
💛 You are not alone in this journey
❓ What are INFACT parent meet-ups?
INFACT parent meet-ups are informal, supportive gatherings for families affected by Fetal Valproate Spectrum Disorder (FVSD), Fetal Anti-Convulsant Syndrome (FACS), and other anti-seizure medications in pregnancy. They provide a safe space to connect, share experiences, and access support.
❓ Who can attend the INFACT meet-ups?
Our meet-ups are open to parents, carers, and families. Children and adults with FVSD are also very welcome to attend, giving them the opportunity to connect with others their age.
❓ Do I have to speak or share my story?
No. There is absolutely no pressure to speak. You are welcome to attend, listen, and take part in a way that feels comfortable for you.
❓ Are the INFACT meet-ups free?
Yes, all INFACT meet-ups are completely free to attend. However, we do ask that you register in advance via Eventbrite.
❓ How do I book a place?
All places must be booked via Eventbrite. This helps us manage numbers and ensure a safe and comfortable environment for everyone attending.
❓ Where are the meet-ups held?
We host meet-ups across the UK, including London, Birmingham, Newcastle, and Exeter. All venues are publicly accessible and located close to major transport links such as train stations.
❓ Will I receive support or information at the event?
Yes. The meet-ups are an opportunity to gather information, share experiences, and connect with others. At some events, professionals or guest speakers may also attend to provide additional support and insight.
❓ What is Fetal Valproate Spectrum Disorder (FVSD)?
FVSD is a condition caused by exposure to Sodium Valproate during pregnancy. It can affect physical development, learning, and behaviour, and often requires lifelong support.
INFACT 