“The UKs Leading Voice for families harmed by Sodium Valproate and AEDs in Pregnancy”
INFACT – Supporting Inspirational and Independent People
INFACT (The Independent Fetal Anti-Convulsant Trust) provides vital information, advice, and long term support to individuals and families affected by Anti-Epileptic Drugs (AEDs) taken during pregnancy. If you are concerned that exposure to these medications may have harmed your child, we are here for you.
We also support healthcare professionals and carers working with affected individuals.
Who We Are
INFACT is the recognised and Parliamentary endorsed National Campaign Group for Sodium Valproate. We represent affected families primarily across the UK but also worldwide and work tirelessly to raise awareness of Fetal Valproate Spectrum Disorder & Fetal Anti-Convulsant Syndrome (FACS) and related disorders. We campaign within government and health agencies to improve policy, support, and justice for those impacted.
Our work includes:
- Providing emotional and practical support for families
- Raising awareness among medical professionals
- Campaigning at a national and international level
- Collaborating with health and regulatory bodies
Our Story
INFACT was co-founded in 2012 by Janet Williams MBE and Emma Murphy, both mothers of children affected by Fetal Valproate Syndrome. Following the collapse of Product Liability Litigation against Sanofi, they were advised to establish a Trust to campaign for justice and change.
Their dedication, personal experience, and tireless advocacy have brought significant changes to the prescription and discussion of Sodium Valproate in the UK.
Our Mission
We are committed to ensuring:
- No more children are needlessly harmed by preventable prescribing practices
- Families receive justice, support, and recognition
- Medical professionals are fully informed of the risks of AEDs in pregnancy
Copyright Emma Murphy, Janet Williams – Independent Fetal Anti Convulsant Trust
INFACT was officially registered as a charity in 2013 (Charity No. 1162441 / Company No. 907575).
INFACT 